Hi

I'm on cyclophosphamide
It's pretty grim
I'm not spewing
But the nausea is there
Feeling dire
Pain, terrible pelvic pain in my back amd pink wee

Plus flair ups which are tackled in the giving of pred pulses

I feel rough really
Spoken to rheumatology today
My crp is moderately down bearing in mind the pulse of steroids
It's 70
From 97
So yep!
It's grim!

I'm tryin so hard to hang in there
I have naff all options
Other than this
I'm trying so hard to hang on there in my bed!

Please God can it work just a little plllleeeease

Jenni

You really are going through the wars. I really, really hope your cyclophosphamide will kick in soon.

Have you tried crystalised ginger for the nausea? You can get it from Holland and Barrat. Although it comes in big chunks, you only need a little and it definitely helps. Plus it has a sugar coating which can't be bad

Hope you feel a little better sooner.

Jackie
xx

hi Jenni,

my heart goes out to you at what you're going through,

wish there was something constructive i could say .. other than i truly hope that you get some relief soon, and that the drug does some magic for you.

no one deserves to go through what you are,

you are in my thoughts Jenni.

Suzanne x

P.S. sorry for the double post didn't seem in was sending at all x